I'm excited about today – for the first time since May I'll be getting a treatment for my Crohn's disease. Oh, and I can't wait. I haven't been feeling good at all. Low grade fevers, constant headaches, stiff joints, bumps all over my legs (erythema nodosum) and no energy.
Up until I moved to Alberta in July, I was getting a treatment called Remicade every two months at the Huntsville, Ontario, hospital. I'd go to the chemotherapy clinic and they'd hook me up to an IV and give me this ultra expensive drug (about $7,000 every two months).
Remicade has literally changed my life. My doctor wanted to take out my colon until we tried this. And while I was on the drug, I had no Crohn's symptoms. I carried on like a healthy person! It was wonderful.
Moving meant losing my doctor, my job and my health insurance – the latter was a huge deal. Getting any insurance company to cover that humongous bill is like pulling teeth without anesthetic. I have had to jump through a myriad of hoops in order to get coverage from Dave's new insurance company. Not only that, I had to find an internist, as well as a family doctor. And the paperwork! My gawd, the paperwork and the phone calls and the e-mails have been overwhelming. Meanwhile, I've been getting sicker and sicker.
Oh well. Not anymore. Today I go to the Cold Lake Hospital for my first treatment in a long time. I'm so excited! Wish me luck!